A precious blog friend in need of prayer

Forgive me for not posting this sooner. I emailed to so many of you for my blogger's Please read!
This is a family that we have come to love and know. We have been praying for them, now I ask that ALL of you do the same. Johnna is the absolute definition of FAITH! She is a faithful servant to inspire us all. They are expecting a child that will most likely never survive. Now, I beg you to read and follow their story. Most of all may you be led to pray for them. We certainly are! This is the letter that they sent out to all of their friends and family Jan.5, 2009

Dear Friends,

We just wanted to thank you for your warm wishes and excitement regarding our pregnancy. We waited many years before starting our family and were thrilled to share our news over the past few months.

Just before Christmas break, Johnna's OBGYN mentioned that the amniotic fluid appeared low and that she should return in a few weeks to check it again. At that time, we were informed that this could be due to dehydration. On December 30th, we returned to the doctor to find that there was no fluid present and our doctor referred us to the Maternal/FetalMedicine Clinic (UAB Health Systems). After seeing a doctor within this high-risk group on January 2nd, we learned that our baby has "bilateral renal agenesis" which is the absence of kidneys, ureters and the accompanying arteries. This means that the baby cannot make amniotic fluid(which is the baby's urine) and therefore will not have any fluid to help it's lungs mature or grow for the rest of the pregnancy.

Our doctors expect the baby to go full term (or close to it) but its current lung and kidney problems will not be allow it to live very long (typically only 30 minutes but could be up to a few hours). Although we are devastated now,we know the worst is to come and are trying to prepare ourselves with each passing day. What should be the happiest time of our lives together has now become the saddest. Our doctors said the best thing for us to do is go about our normal routine, and that is what we will do as best we can. We're just trying to take it one day at a time...

Intellectually, we understand what is happening, but for us this is an emotional struggle and test of faith like we'd never thought possible. We will have another ultrasound at UAB on January 16th and will be seen by the UAB physicians and our OBGYN for the remainder of Johnna's pregnancy.

We know many of you are already praying for us and we feel those prayers everyday. If you wish, please pray specifically for the following:
1.That the baby be comfortable and pain-free during pregnancy and delivery (lack of fluid can cause space for the baby to be very compressed)
2.That we have AS MUCH TIME AS POSSIBLE with our baby after delivery
3.That we know what to do regarding medical decisions before and after the birth.

Please feel free to pass along our situation to others we know or don't know (Sunday school prayer list, church prayer list, etc.). Thank you for your friendship and prayers during this very difficult time.

Jeremy & Johnna Stafford

This is their blog Our Journey with Baby Stafford

Please get the prayers going for this family!
Father God, I pray that Johnna and Jeremy continue to find strength in you. That their faith continues to be a beacon on the path for those of us that seek you. I pray for as many precious moments as possible for them to hold this amazing blessing you have given them. That for at least a brief time they can look into Baby Stafford's face and see you. Surround them with your love and ours Father God. Continue to grant them hope, and let us not forget, you are the great physician and ALL things are possible through you! AMEN!