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Monday, July 28, 2008

Orren is home.


We are at home and resting. Orren has not felt much like eating today and has pretty much just had milk and juice all day. Guess he is a little aprehensive about it.







What they found today:



His specific esophogitous cells are indicative of allergy cells. Just like if you had a bee sting, the cells that would be found around the area.



What this means:
He has a food allergy that is causing this problem. They did some blood work to find the allergen. Milk; egg whites; egg yokes; wheat; soy; and seafood. I already know what the allergen is without the tests. Since he won't eat eggs and has only had them once, he is gluten free so there goes the wheat, he has never had soy to my knowledge, Seafood would only have been one or two times due to cross contamination....... That leaves MILK. Oh, I forgot corn..... it could be corn.He started a medicine ZEGRID to help with the cell situation. We were told that his eczema is also a BIG sign of this. If this condition is left untreated it usually develops into some type of asthmatic situation. (Guess who I am taking for testing immediately, she has or has had every symptom and I truly think, based on what I learned about them today, it is an allergy that has been left undiagnosed. It would also be odd for a sibling not to have one)





What will happen:

Orren has at least one, possibly two more surgeries in his future. The first is on August 12, 2008. After we have removed the allergen and been on the medicine to see if it is working. They will biopsy the area. The second surgery will be if it isn't better and the infection has to be surgically removed and the area treated with steroids. (this would have him on a feeding tube for a while)


What we need:

Prayers. Lots of prayers. This gets harder and harder every time. I thought it would get easier, it doesn't. I worry more and more every time he is put under and all the risks that are involved. The more drawn out the weaker I get I suppose. I thought I was going to need to be sedated during his blood work!

We also REALLY miss our church family and wish we could be back in those loving arms, we have not been cleared to have him in nursery/ day care type settings just yet or any large indoor crowds, so for now we will still be at home. Just know we miss and love you and are eager to return.

We are all now trying to rest. Olivia is with our precious friends from across the street at Pump It Up. She will return this afternoon, so I think we are going to try and take advantage of the quiet time.

Thank you all so much for your prayers, calls, attempted visits to the hospital(our poor minister, Dave next time we will meet you out front!), and your emails. I know we all have such busy lives, but for you to take time out of that for us in such a way is so special. We love each and every one of you and today we felt surrounded by your love.
Praise God for a good day!

8 comments:

Anne Marie said...

I got your back and will say a little prayer for you and your family.
Does he have a special diet from this point on? We have a little boy that is
so allergic to certain items that he can not even be in the room when you
fry an egg. I have never seen anything like it! I wish him the best of luck
and look forward to hearing from you when you find out more.
AM

Pola said...

Get some rest and thank you for the update. I may be in town this
weekend, but will let you know as soon as a decision is made. You are
in my prayers.
Have a good afternoon!

Pola

Anonymous said...

Thanks for letting us know -- we were so worried about all of you.
Please know that your church family is praying for you and surrounding
you with love. Can we help with anything else? I'm so sorry about his
allergies. I know that your heart hurts when your baby hurts. Please
continue to keep us updated.


Blessings,

Lisa Elliott
Membership & Evangelism

Shana said...

Jess-

At least they think they know what it is. I cannot imagine how you feel and just
couldn't handle the fact of my baby being put under. I know you feel he is in
the best hands. Please know that the little man is in our prayers!!!

Love you!

Shana Krapovicky

Anonymous said...

Jessica,
I just got back from Virginia visiting my five grandsons. Watching them enjoy good health was gratifying; however, life presents us all with new challenges.
My prayers are still with Orren and your family.

Vince

Anonymous said...

Good luck. We will be thinking of each one of you. Please let me know if
you need anything.

Anthony

Charnita's Xpressions said...

I am thinking of you, my new friend.
Hope you and baby are resting.
I will include you in my prayers.

Leigh said...

Certinaly praying for you. It will be a life change, but with God---
"I can do all things in Christ who strenthens me".

All the best!